My Medical Journey
My mom has been sharing about my medical journey on CaringBridge’s website since 2005 and more recently on the National MPS Society’s Courage Page. Both websites have been helpful for my family to be able to keep everyone updated. They’ve also become helpful resources for other MPS, ML, and rare disease families who are going through similar things as we are. I invite you to follow along on my CaringBridge and National MPS Society pages.