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What is MPS?

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About Me

Hello and welcome!

Thank you for visiting my website.

My name is Michelle Hopkins. I’m a junior in high school. I enjoy singing in my school’s choir. My favorite subject is Spanish and I want to speak it fluently one day. I like drawing, watching TV, going to the movies, playing games, and singing karaoke with my family and friends. From the time I was a little girl, I’ve loved learning new things. I’ve been on honor roll every year. At school, I’ve been recognized as the Most Inspiring Student twice and I’ve given speeches about perseverance and determination.

I was born with a rare disease called MPS. There currently is no cure. I’m sharing my voice through music and advocacy to help raise awareness and support for MPS, ML, and all rare diseases so one day very soon there will be cures for us all.

In 2018, I got to be the lead singer on the song “Heroes,” written by my friend, award-winning songwriter/producer Kathryn Cloward, and I was featured in the music video. This was a lot of fun for me and very important, as it’s a song that helps shine a light of awareness on the rare disease community. The music video even made it onto the 2019 GRAMMY Awards® ballot for consideration!

Since “Heroes” was so much fun to do and I’ve always loved singing so much, I spent much of 2019 working with Kathryn to write an album of songs together. I’m so excited to share that my new “Have Hope” music album will be releasing in fall 2020. “Have Hope” includes encouraging songs about determination, courage, love, and hope. These songs mean a lot to me because they show what I have felt in my life. I can’t wait to share my new songs with you! I think every child, teenager, and adult should find the bright side in every problem they face and my “Have Hope” songs are all about that.

I’m thankful for my parents, who have always inspired me to be brave, and for my brother, who is my best friend and hero. I’m also thankful for you for being part of this journey. Together, we can do so much good—one person at a time, one song at a time.

What is MPS?

MPS is the shorter way of saying Mucopolysaccharidosis.

People who have MPS, like me, are living with a rare disease that doesn’t have a cure. Our body is missing or doesn’t have enough of an enzyme needed to break down long chains of sugar molecules — so these molecules build up and cause various health problems. There are treatments available that can help us live longer lives, including bone marrow transplants. When I was 20 months old and my brother Christopher was almost four, he provided me with his bone marrow. This is one of the reasons I call him my hero! Every person with a rare disease needs heroes to help us live full lives. That’s why I’m singing and speaking up to advocate for MPS, ML and the entire rare disease community. Advocacy saves lives!

Michelle Hopkins Advocating for Rare Disease Awareness - square


For singing and speaking inquiries, please fill in the contact form below.

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